Roundtable: Innovating for Patient Recruitment for Rare Disease Trials

Session details:

This roundtable discussion will focus on practical approaches to finding eligible patients earlier, reducing burden, and building trust in communities that have historically been underserved by clinical research.

• Where traditional recruitment models fall short in rare disease trials

• The role of patient advocacy groups and registries in accelerating enrollment

• Strategies to overcome diagnostic and referral bottlenecks

• How decentralized and hybrid models are improving access and participation

• Balancing global expansion with site quality and patient experience

• Building long-term trust with rare disease communities