Sabina Kineen

Bio:

Sabina Kineen is a dedicated rare disease patient advocate and respected leader within the rare disease community, recognized for her passion for patient education, empowerment, and community support. Through the Fabry Support & Information Group (FSIG) and her years of independent advocacy work, she has played an active role in advancing awareness initiatives, fostering meaningful patient and caregiver connections, and advocating for the needs of individuals and families affected by Fabry disease and other rare conditions. Drawing from both personal experience as a patient and caregiver, as well as years of clinical trial participation, Sabina frequently speaks at industry, medical, and patient-led conferences and events, sharing insights on the patient journey, mental health, caregiving, advocacy, and the real-world impact of living with a rare disease. She is especially passionate about advancing health equity, improving health literacy, and reducing barriers to clinical trial participation and access to care. Sabina is committed to amplifying patient voices, encouraging collaboration between the patient and medical communities, and helping create supportive spaces where patients and caregivers feel informed, understood, and empowered.